Planning for the future with Dementia

Table of Contents

Getting organised now means you can feel confident that the care and support you receive in the future will be right for you, and your affairs will be managed in the way you wish.

How should I plan my legal affairs if I have dementia?

 

There are certain things you can do now to sort your legal affairs that could make a real difference down the line.

You can arrange for someone to act on your behalf

You may want to set up a lasting power of attorney (LPA) in case there comes a time when you lose mental capacity. When we talk about ‘mental capacity’, we mean someone’s ability to make and understand the consequences of their decisions. An LPA lets you appoint someone you trust (an ‘attorney’), such as a partner or relative, to make decisions on your behalf when you’re no longer able to do so. There are two different types of LPA – one for financial decisions, and one for health and care decisions. You have the option to choose more than one attorney. An LPA can’t be used until it’s been registered with the Office of the Public Guardian (OPG). It’s a good idea to register your LPA as soon as possible after it’s made, to make sure it’s ready to use if and when it’s needed. 

If you lose mental capacity and haven’t made an LPA for financial decisions, then a friend, relative or other representative can apply to become your ‘appointee’ and deal with your State Pension and benefits on your behalf. For other financial decisions, such as those to do with your savings or property, someone willing to act on your behalf can apply to the Court of Protection to be appointed as your ‘deputy’. Usually, it’s advisable to plan ahead by making and registering an LPA because this allows you to choose who acts on your behalf and helps avoid a delay between losing mental capacity and others being able to act on your behalf. Click here to find out more about what happens if you lose mental capacity and you don’t have an LPA

You should write a will, if you don’t already have one

A will lets you state how you’d like your estate (your property, savings, and possessions) to be distributed after you die. If you don’t have a will, make one soon as possible – having a will can give you and your loved ones peace of mind. If you already have a will, check it to make sure it still reflects your wishes. 

You can make an advance statement to outline your care preferences

You can make an advance statement to explain you’d like to be cared for in the future. For example, you can specify your religious beliefs, what you like to eat, what kind of music you like to listen to, or anything else you think is important for people to know about how you want to be supported. Advance statements aren’t legally binding – but they can be helpful for people involved in your care and reassuring for you. 

You can make an advance decision to refuse medical treatment

An advance decision lets you say which types of medical treatment you don’t want in the future. This will only be used if you lose mental capacity, and so can’t make or communicate your own decisions at the time the decision needs to be made. You must state the exact treatments you don’t want and the circumstances in which you don’t want them.

If you intend to refuse life-sustaining treatment, your advance decision needs to be in writing, signed and dated in the presence of a witness who must also sign it. Your advance decision is legally binding, so health professionals must follow it.

How should I plan my financial affairs if I have dementia?

There’s no right or wrong way to react to a dementia diagnosis. It may seem overwhelming at first. You may feel shock or you may be worried about the impact it will have on you and those close to you. On the other hand, you may feel relieved that you can attach a name to what’s been going on. Getting a diagnosis at an early stage can help you make changes to live as well as possible and make plans for the future.

Despite the challenges a dementia diagnosis can bring, many people with dementia live fulfilling lives for a number of years.

The memory clinic or health specialist in charge of your care should tell you the type of dementia they think you have. They may suggest drugs to slow the progression of your symptoms. They should also arrange to see you regularly to check how you’re getting on. 

Ask to be given the name of someone you can contact when you need to. They’ll help explain what’s going on and how you can get the help you need. They’re sometimes called your dementia advisers or a point of contact, but their job title may vary from place to place.

Contact Us for Support

If you or a loved one is living with dementia, Age UK Hertfordshire is here to support you. Our dedicated team can provide information, advice, and connect you with the resources you need.

  • Call Us: Speak to an advisor at 0300 101 3946.
  • Email Us: Send your queries to info@memorysupportherts.org.uk

Age UK Hertfordshire – Here for You Every Step of the Way

Navigating life with dementia can be challenging, but you’re not alone. With the right support, you can focus on what matters most – living well with dementia.